If you are interested in knowing more about scleroderma, you have come to the right place. This website has been designed to provide you with easy to understand information from screening to treatment and latest research advances, including our own. Are you ready to find out more?
If you are interested in knowing more about scleroderma, you have come to the right place. This website has been designed to provide you with easy to understand information from screening to treatment and latest research advances, including our own. Are you ready to find out more?
Scleroderma is a rare, chronic connective tissue disorder in which the immune system attacks skin and organ cells. This leads to the production of thick skin, scar tissue and damage to various organs. Physical distress, disfigurement, reduced quality of life and reduced life expectancy may occur in some people with Scleroderma. Early diagnosis and treatment is key to reducing the risk of organ damage and long-term complications.
ASIG CENTRES
One of the most rewarding outcomes of ASIG’s activities has been the improvement in the quality of care ASIG centres can deliver for people living with scleroderma. Most centres have expanded the services they offer to include specialist nurses and have become centres of excellence.
Our Research
The causes of scleroderma are unknown. Scientists and medical investigators work to understand the condition. We support a coordinated approach to research into the cause and treatment of scleroderma. We do this through our research program funded by member states, corporate and individual sponsors. You can find some of ASIG’s most notable publications between 2008-2020 here.
This website has been designed to provide you with easy to understand information from screening to treatment and latest research advances.
Donations to the ASIG research program are used to:
Fund blood sample research which we hope will help to explain why some people develop the serious complications associated with scleroderma - $30 would cover the cost of one sample
Maintain the national database, a vital part of rare disease research - $250 would provide the hardware to link one researcher to the online database
Contribute to a scholarship for a PhD student - Rheumatology Consultants or Registrars who choose a career in research undertake a three-year research degree. ASIG is committed to sponsoring one student per year who is interested in focusing on scleroderma and contributing to a better understanding of this rare disease.
Direct all donation questions to the St Vincent's Foundation:
Postal Address
St Vincent's Foundation
PO Box 2900
FITZROY VIC 3065
